1. Soon after I arrived at the transplant clinic at Providence Sacred Heart this morning, I learned that my appointment would be with Physician Assistant Natasha Barauskas. I was uplifted. I've met with Natasha about four other times. She's easy to talk with. She's positive. She's very knowledgeable and listens to my questions and comments attentively and responds to them intelligently. (So do the docs I meet with.)
In other words, while she's not a doctor, she's a superb transplant specialist whom I trust and enjoy.
We talked at length about the stability of my lab results, the effectiveness of the treatments ordered for me after the biopsy, and what good shape I'm in largely because, through the combined efforts of Dr. Bieber and the care team at Sacred Heart, the treatment of the early signs of organ rejection got underway in a most timely manner.
Like Dr. Bieber, Natasha Barauskas talked about the early signs of rejection as a fire that needed to be put out and one that could, conceivably, smolder.
But, right now, things seem stable, stable enough that I will be doing labs every two weeks rather than weekly.
In two weeks, I'll have the specialty immunologic labs repeated, the ones I had done back in June. One of those tests, Prospera, assesses the risk of transplant rejection. My June 23rd test came in at a very low risk of rejection and we hope the results of my August test will be similar.
Again, that Prospera test result is evidence of what a good thing it is that treatment began so soon on those early signs of rejection.
2. I told Natasha Barauskas that I hadn't been worrying about this complication. I wondered if this was an appropriate response or was I in denial. She chuckled and assured me I was not in denial, that she wasn't worrying about my case either, and that she thought it was a great thing that I wasn't worrying.
Then Helen Hedges, the social worker I've had many conversation with over the last seven years, dropped in (a pleasant surprise) and we talked at length about how much I've benefited over the years from following the doctors' instructions and devoted myself to taking care of myself in the ways they've ordered.
We also talked about worrying. She seconded Natasha Barauskas' assessment: I'm not in denial!
When my wonderful conversation with Helen Hedges ended, to my surprise, Natasha Barauskas returned.
While Helen Hedges and I talked, Natasha had had a meeting with Drs. Murad and Samer about my case to make sure all three of them agreed with Natasha's assessment of my progress and with the plan she proposed moving forward.
They did agree, with one variation. They collectively decided to prescribe me a medicine that could help stem the protein leaking from my kidney into my urine.
Natasha told me during our second conversation that this is how the transplant care team works. They always consult with each other about each case to make sure they are seeing everything and are satisfied with treatment plans.
I found this very reassuring. I already knew that Dr. Bieber is always ready to consult with the team in Spokane about things that feel a bit out of his reach -- for example, it was in consultation with Dr. Murad that he ordered my biopsy -- so I'm glad that the care I'm receiving is a team effort, that no care provider is on an island making decisions alone.
3. I learned today that jazz muscian and composer Chuck Mangione died on Tuesday.
This news opened the gates for a rush of sweet memories and sadness.
Back in about 1977-79, I became obsessed with a bunch of jazz musicians who, at least at Whitworth College, were popular at the time. I loved listening to Maynard Ferguson, Bob James, Joe Sample, George Benson, Joe Farrell, Spyra Gyra, The Crusaders, and others, but, for me, the king of them all was Chuck Mangione.
His song, off of his Main Squeeze album, "(The Day After) Our First Night Together" played over and over in my head all the time back then, a most welcome so-called ear worm, that made me feel sentimental, lovey-dovey, dreamy, and wistful, along with a host of other feelings. Sometimes, my mind (which has a mind of its own, as Jimmie Dale Gilmore sings) would take a rest from "Our First Night Together" and switch to "Feels So Good" and the results were similar.
I don't have access very often, nearly fifty years later, to the intoxicating rush of ecstatic feelings I felt so often in my early to mid-twenties, in the early years of being married for the first time.
Today, however, I clicked on and played "(The Day After) Our First Night Together" and hearing it helped me blow some of the dust off those strong feelings from the late 70s and for about eight minutes I was back in Spokane, working as a very young part-time instructor at Whitworth, being transported to a stratospheric plane of joy by hearing Chuck Mangione perform at the Spokane Opera House, and enjoying a wealth of friends and friendships. To this day, I bask in the memory of great times, outings, conversations, and meals we enjoyed together.
While Chuck Mangione rests in peace, his music will help me rest in cherished memories of a couple or three of the most intensely happy years of my life, years that featured Chuck Mangione playing tunes right at the center of it all.